2023-12-24

December 24, 2023 – Thankful for Little Miracles

 

I just wanted to wish everyone a Merry Christmas, Happy Holidays, and/or just a Beautiful Day!!

 

I am not going to linger on the negative long, but if we don’t acknowledge the lows, it’s hard to see the contrast of the highs. Our great day, may be someone’s mediocre day and someone else’s bad day.

 

My little family has had the most difficult year of our entire lives. Which given my age, to say this one is the worst is something. Add to that, in the past, I’ve experienced some of the most difficult times, of just about anyone I know. I’ve had some years that were absolutely devastating. So again to call this the worst year really says something. In addition to it being a rough year, today was set to potentially be one of the worst days of the year, (preparing to spend Christmas broke, only the presents other people were able to buy for the kids, and stuck in the hospital). We were going to make the best of it. We were going to decorate the room and I was going to drive home to get my daughter and my sister and bring them to the hospital so we could open the presents, eat some treats, maybe drink some hot coco and watch a Christmas movie… Like “Die Hard” 😜. But I’m not gonna lie, it was a little heart breaking. 

 

That said and amidst all of the pain and all of the challenges this year, I’ve found so many things to be thankful for. I’ve been overwhelmed with seeing people (family, friends, coworkers and even strangers),  showing us love and care. I first must say how much we appreciate the staff at Brenner’s Children’s Hospital. Literally everyone from doctors and other providers, the RNs and NAs, the social workers, and life services. They have been so kind, and compassionate. They have been so helpful and considerate. I could not ask for better staff. They have all been amazing. Each one of them has been a miracle on their own right.

 

Getting financial donations to help us with the expense of just day to day survival has taken tremendous pressure off of me. One of the things I was not expecting was how receiving donations would affect us as far as feeling connected to people, to feel the support and encouragement of people. We’ve had to spend so much time isolated. Especially Brandon and Racheal and my sister. But seeing people support us has unexpectedly made me feel emotionally supported in addition to financially. Even non-monetary support has been wonderful and overwhelming. Again each supporter has been a miracle in their own right.

 

Finally, with almost all hope of getting discharged from the hospital and going home on or before Christmas lost, they told us this afternoon that he had not had a fever in 24 hours, which we knew but then said his afternoon labs looked good enough that we could go home!!! We were discharged this afternoon and got home this evening. What a wonderful little miracle. We get to spend Christmas Eve and Christmas morning at home, as a family!!

 

 

I have clinical updates to post, but those will have to wait. The kids and I are going to go see the Tanglewood Festival of Lights. We’ll take some pictures and try to add those and others to the website.

 

Thanks again for all of you that have been the miracles my family needs. And thank you in advance to all of those that will become more miracles for us going for. I hope and pray that we have been and will continue to be an increasing miracle for others in their lives.

 

Merry Christmas, Happy Holidays, Have a wonderful night…

 

With Love from my Family to You

 

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