December 17, 2023 – Sunday was another challenging day.
We ran out of the mix that was shipped to us to run through Brandon’s feed tube so I bought a bunch of pediasure to use. Side note, that stuff is expensive. 6 bottles is $15. We run 4 bottles or 32 oz per night. That’s 28 bottles or $70 for the feed over night each night. Anyway, it seems that if we use pediasure and it stops for more than a minute or two, it will clog up the tube real bad and then it’s a real task to get it opened up again. But now that we knew, we could just make sure to flush the tube immediately after it stops, without delay.
But before we could even get to Sunday night, Brandon got sick and threw up. When he did, the feeding tube came out of his mouth along with everything else. So it was still run into his nose, but out of his mouth. There was no way for us to reinsert it here at home, so Brandon pulled it out, through his nose. What a day.