Sunday November 26, 2023
Everything was going pretty well. Brandon had been tolerating the nightly feeding through the feeding tube pretty well. He was getting almost 800 ml of protein shakes each night over the course of 12 hours. The tube was still frustrating him, but he was dealing with it.
However, this afternoon, Brandon sneezed or coughed which made the feeding tube move which made him gag. It escalated quickly and before I could even understand what was about to happen, he had yanked the entire feeding tube out in one quick motion. We told him he would end up having to get a feeding tube put back in, but since we were going in for Chemo on Monday, if he would try to drink as much shake as he could during the day we would wait until Monday, rather than going to the ER to get it put back in.
He was not able to drink much, certainly not as much as I had hoped for. He did try, but it just wasn’t happening. Other than that, the day was not bad.